Thursday, August 28, 2014

Final Plans

The boys have dropped off their school supplies and toured their classrooms one last time. They're both excited to have a class pet. One was a guinea pig and the other was a smaller type of rodent. LOL, I don't know, it was in a glass tank and small.
I took Brady in his room and Jason took Jax to his. Brady was coloring his name tag that will go up by his coat hook, when suddenly Jax came bouncing back in! Apparently he colored his name tag, ran around his room and came back.
Oy.
He was scanning everything so fast and each time I tried to talk to him he was way too busy to even look at me. Oh boy... I can see there is still a lot of 'focus' work to work on with him and his IEP plans will be in full effect for sure.

I spoke to the principal about Jax's feeding therapist being able to come in during lunch once a week and she wasn't sure if it was "district-legal" since he's a private therapist using 'their' facilities, but she encouraged me to contact the special-needs director to see if I could. The principal said she hopes we can get it through since it affects Jax 'medically' in the end. I made the call today and left a message, so we'll see where that goes. If we can't get it, then Jax will just have to rush to Mr Nick once a week for an early dinner.

I have Brady's PROMPT speech set up for after school for the month of September. His grant goes until then, so we're definitely going to use it. We'll have to do a few Saturdays, but that's ok.

I found out that there aren't any 'aides' for the kids getting off the bus, but there are helpers directing kids where to go. Hmmm... I asked the principal and the teacher if that was really sufficient for kindergarteners the first day and the principal said it is for some, but they'd appreciate Jason and I being there to make sure, especially given Brady's disorder.
So... we get to jump in the chaos of following the bus and helping the boys understand where to go. All children have to go into the school to hang their backpacks and then go back outside to the playground until the bell rings. They then line up in specific places. They have to all put backpacks inside first since all children have iPads and they don't want them out on the playground.

The instructions will be fine with the boys after a few practice runs, but we definitely need to help oversee for a few days.

The boys are COUNTING DOWN the days even though I keep explaining to them that their days will never be the same again and to try and enjoy the last few fleeting days!

I heard Jax asking his stuffed Fox (Foxy Mama) if she wanted to go to school with him on his first day for show and tell. I laughed listening to the conversation and thinking about Jax announcing his "pet Foxy Mama" to the class.
I requested Brady's class list from his speech therapist and we put all the names in his iPad and will record my voice saying them. They just need to snap a photo of them each under their name and he'll have better access to talking to and about his classmates then.
We're almost ready!

We've had some random/odd behaviors this past week. First, we noticed a really nasty bruise on Jax's back after his bath. It was small and almond shaped. We asked what happened and he said, "Oh... we were playing monsters on the trampoline last week and Brady bit me". UHH, what?!
They NEVER tell on each other, which is nice to a point, but come on! We asked Brady and he seemed a little confused as if he didn't remember, but he trusted Jax's statement. We had a long talk with them that teeth are weapons and they are to NEVER put their mouths, hands, feet or anything on anyone else ever.
Brady got upset realizing Jax was 'hurt', so I don't think he realized what he did, but he understood why lost some iPad time. Seriously... what will I do with these two as teenagers? They'll keep everything from me!

We also had a very FIRST happen with the boys last night. Brady came out of his room after going to bed. I know that's probably normal for most kids, but it has never ever happened with our guys, so we assumed someone was sick. Nope, Brady had tears streaming down his face that he was scared of the dark. How odd? He made me put a night light in the week prior and asked me for another one.
Has this happened to anyone else before? The boys have never had a nightlight in 6 years and now suddenly Brady is scared of the dark. Poor peanut, but random, hey?

We're hoping to have fun-filled Labor Day Weekend - hopefully some fun pics too!


The boys taking a tube-ride with friends Hayden and Cole last weekend!

The boys had their friend Kate over for dinner. She played Uno with them after so I could get some baking done!

I let the boys try to follow some Lego instructions by themselves one rainy afternoon while I got some work done. It wasn't correct, but it was kinda close!

Who wouldn't love a mini-me rubbing their head at night?

Brady coloring his name tag for his coat hook during Open House.

Thursday, August 21, 2014

So much school info

We are on summer countdown, which is a good thing and a bad thing. No one wants warm weather to be gone of course!
We are surviving our first of two weeks of working while the kids are without a sitter. Some days are better than others :)
We're having some rainy days, which oddly make it easier to have the boys inside while I work, because they really keep each other busy and aren't asking to be outside. I bribe them for silence if I need to make important calls, haha. The therapy-appointments and upcoming doctor appointments add a wrench of course too, but since it's all just a fleeting moment in time, we know this will pass. They will soon be gone all day, most days, for the rest of their childhood... wow.

Brady woke up vomiting yesterday at 4am, but was MUCH better by noon. How random and odd, but then again, that's par for the course with young kids I guess.
We had 'Registration and Forms' day at the school where we turned in all the fees, received a lot of paperwork, signed up for the first teacher conferences and created our online access for school needs. The boys will have a final Open House on Wednesday to hand in all their supplies and see their classrooms one more time before the official start of school.

We went very early on the Registration and Forms- day and were able to have real talks with a few key people without crowds. Jax re-met Miss Janet (I can't help but to think of the original Miss Janet Jackson!) who will be his lunch aide helping him eat. She and I chatted and I feel SO much better. She's prepared for any possible gags/vomits and will encourage him to eat specific amounts. She thinks he'll switch to hot lunch soon enough which I love. Any acclimation to normalcy for mealtime makes my heart sing. We also touched base with the Health Room aide and turned in Jax's inhaler and extra g-tube with paperwork. She can work a g-tube and asthma issues like a champ, so I feel good about that too.

We met and spoke with the speech therapist again and we made a plan that I'll fill Brady's iPad with things he did over the summer so the therapist can help Brady tell the class when it's his turn. We were told in advance about this activity, so that's helpful. The therapist has a tough name, so she said Brady can call her Mrs T until he can say it fully. He also got the kindergarten teacher with the easier name, so I'm thankful for that. His 4k teacher was Mrs Marino and his kinder teacher is Mrs Marina, how great for him!

I have one more anxiety-based need to settle up before the first day, and that's to know who exactly will lead the kids off the big-boy bus and show them where to go. Do they go to the playground for a bit and follow the crowd?? I need this info because I don't want to follow the bus and hover the first day. Parents aren't allowed inside the school anyway, so I'm hoping our 3rd trip to this tiny school on Wednesday to review the plans will be enough. The boys of course show ZERO anxiety and are just excited to go. I just need to know for sure everyone is covered. They'll have their bracelets on as advised, but still, I need to know who, when and where and all will be good.

I can say with great relief that Jason and I are very happy about this small elementary school they're attending. When we walked in, the principal asked our family name. We said "Lettenberger" and she said, "OH, Brady aaaaaand..." as she searched through the folders... I mean, really? Even the kindergarten teachers saw the boys and said "It's the Lettenberger boys!". How great is that with only meeting once? The boy's classrooms are connected by a small hallway with a bathroom, so they'll be closer than 4k. I think this year is going to be GREAT for them. The long days will be an adjustment, but it will be great.
I'm meeting with Jax's feeding therapist tomorrow to see if he'd be willing to go to Jax's school lunch once a week. Brady will still have his PROMPT therapy a few times a week for Sept, otherwise I'm trying to keep extra activities to a minimum until they're acclimated to the days.

So much change for our family!

The last day of t-ball. They were so proud to make every game of the season! Could Brady be cuter in this photo?

Jason and I sending some love home to our boys while out in Vegas.

The boys got a 'Wubble Bubble' (that already popped) and loved that thing.



Another coach from t-ball gave Jax a left-handed set of golf clubs. Jax is in love with the sport!


I can tell Brady is growing up. He wants very specific things for school this year. He even put on certain hats and danced in a mirror to see if he liked them. OMG. He put this backpack on and said he wants THIS one. Too bad the line was too long and I was in a hurry. I'm hoping this is still around when I actually go shopping for these things this weekend. Funny thing tho, he asked me to take a photo from behind so he could see what it will look like to others. Seriously.. he rocks.

Sunday, August 10, 2014

Summer Daze

We had a great summer weekend with the boys at home. We hit up the frozen yogurt shop, went on bike rides, went to the pool, had a nice dinner and even got to the state fair!
Jax suddenly decided to be a great eater while out to dinner Saturday night. Jason poured all 8 oz of his Pediasure into a cup and when we turned around, Jax drank the whole thing! Then he proceeded to eat Ninja noodles (we were at an Asian restaurant) like they were his job. The chopsticks may have been the pushing-factor, but hey, we'll take it! He also ate his entire fortune cookie, score!

We caught the last day of the fair and had the right idea to go early Sunday morning because by the time we were leaving, it was packed.
We were pooped out by the time we got home and had a lazy Sunday late afternoon and evening home.
The boys are getting ready for their last week of our beloved part time summer-sitter because she starts school back up in a week - she's a first grade teacher. Jason and I are getting the house and everything else ready to leave on a trip to Vegas on Wednesday. I have some work to do, but it's also my birthday week, so it's going to be mostly fun :) We have a couple guest appearences throughout the few days that Jason set up, so it should be a great quick break away.
When we get home it will be go-time to get the boys ready for kindergarten with their open house (and pictures, eek!) that week and the all-time favorite of school supply shopping!
We'll be without a sitter those last two weeks, so it will be a lot of juggling, but we'll survive, I'm sure!


Getting better on their bikes!

This is just funny...

Jax just 'relaxin' as he says.

Who can resist these things at the state fair?

Brady learning about someone's science project.

Brady loving up a cow calf.

Jax always chooses the dominant one...

Who doesn't love walking corn??

Olympic mini donkeys... no idea what makes them Olympic!

Checking out a big old hog.

SO happy to be on a ride at the end of the day. Brady is actually BUSTING a move right here.

Tuesday, August 5, 2014

Rolling into August






















Hello!
The days are just flying by, but the boys are enjoying their summer break. Since last week they've been to the tons of parks, the zoo, the Children's Museum and up to Nana and Papa's to a charity festival while Jay and I attended a wedding one night.
Brady is doing really well in his speech therapy. Lots of new sounds and the ends to some words. It's working really great. We'll do an end-of-summer video that I'll share when complete. The boys have one week left of t-ball, where does the time go?
This weekend we're home for once and we plan to thoroughly enjoy it with tinkering around the yard, taking some bike rides and hopefully a pool day.
I'll try to better at more photos this month, but here are a few from the last post: 


Auntie Christa with cousin Aidan!

Cousins!

Out with the OLD and in with the better breathing new... We finally updated our furnace/AC units. It will be better for Jax this winter (hospital grade filter/Humidification system) but I'm really looking forward to PRETTY updates at some point :)







Sunday, July 27, 2014

6 yr old Physicals

The boys had their 6 yr old physicals on Friday and it was a great appointment to touch base with the doc about everything. She's happy with the boy's IEP plans for kindergarten and wants to really keep track of the 'focus issues' that continue to present as a topic from the teachers. Even the end-of-summer-school reports made mention of the 'slowing down and focus' issue, but the rest of the reports were all very positive and showed the boys to be ready academically for kindergarten.

The doc was a bit concerned over Jax's recent fall at the zoo and not having his braces anymore, but I think and the babysitter thinks that he stumbled on a step while looking back at animals. We'll definitely have the new phy-ed teacher watch his walking gate and balance though.

Brady's mastocytoma was measured, so we still have our eye on that. Poor B has a number of warts on his fingers that the doc said needed to be treated. So, we'll start with over the counter remedies first and see how that goes. Jax has one large one that she said we could leave alone, but since we're treating Brady, we may as well treat both.

Otherwise, the boy's growth is coming along nicely. The doc said she can definitely tell Jax's hGH has helped his growth. Brady has remained on his curve and came up a bit on height for percentage. He is 43.5" tall (10-15%) and about 36lbs (3%). As you all know, Jax isn't on the charts yet, but he definitely will be if he continues at his current rate-of-growth.

We headed north to Jay's home town on Saturday for his annual softball tournament. The boys had a blast running non-stop around the park with their cousins.
Back home and back to another week packed-full of busy-ness. I'm having a little trouble keeping up with all the summer activities each weekend and all the added work at this particular time. I'm trying to keep it all going! :)

I'm sorry for no photos! I need to restart my computer to get the photos off my camera (don't ask me why my iPhoto does this sometimes) so I'll add them onto the next post!

Tuesday, July 22, 2014

Right in the kisser

Poor Jax took a big digger last week. He and Brady were at the zoo with their babysitter and he tripped on a step and fell into a bolt that was holding a large pole for the skytram. It went directly into his cheek requiring 7 stitches. I was called by the sitter who was definitely shook up trying to figure out with me if she should let the zoo call an ambulance. I asked if they got the bleeding to stop and if she and Jax were ok to be in the 5 minute car ride to the ER. She responded yes to all of it, so I said I'd meet her at the hospital.
Jax was a trooper. When asked by the nurse how he was, he responded, "I'm a brave baseball player". I mean... melt me!

They numbed him up and got the stitches in. Our neighbor (a doctor) removed them Sunday night when we realized one of the stitches was becoming past it's expiration date, so he laid Jax on the couch and cut them off, this kid deserves some sort of metal of bravery. His cheek is looking much better and we've switched from Neosporin to Mederma w/ SPF in it already. I'm sure we'll always see a mark there, but we'll work really hard at making it the best it can. I hate for Jax to be "the twin with the scar", with how people tell them apart.

The boys had a great weekend with Jason. I had a (much needed) girl's weekend away for a bachelorette party nearby and Jay took the boys boating with a neighbor Friday night, to the Waukesha County Fair Saturday with some friends and then back to the zoo on Sunday morning so he could see the scene of the crime. We will definitely be contacting the zoo about possibly making the area safer. The babysitter said a sheriff took her statement and my info off of Jax's med-bracelet and then complimented her about the boy's bracelets. They knew immediately that Jax had a feeding tube, asthma and my name and number. Done! They've officially become useful.
Oh, and when I returned Sunday, we went back to the fair in the afternoon for the boys to see an alligator show and a car show. Busy and fun weekend for the little men!

Jax had his 6 month Endocrin followup today. He is 41.25" and 32.7 lbs. That's about 1.75" and 2.5 lbs more in 6 months, not too bad! Jay and I measure the boys on their height chart in their room the night of their birthday each year and there is a big difference in Jax from the age of 5 to 6 vs 4 to 5. His injections are definitely working. He is still not about to hit the weight/height chart or anything yet, but his rate of growth has sped up, so he has the chance to be a 'normal short' some day if it continues to work. It definitely helps to make it all seem worth it when you see the hard facts. By just 'looking' at him, he doesn't seem to be much bigger when compared to peers of the same age, but the numbers this year are a bigger leap than any year prior. The doc also said it may be helping his injury heal faster too. When asking about the cut on his face, she was surprised it happened 6 days ago and how well it already looked.

The boys are in their last week of pre-kindergarten summer school. Brady is doing SO well in his summer speech program. I'm so proud of him and am loving all the new approximations he's making. He's working so hard and giving up a lot of his summer, but he's seems ok with it. Both the boys have their 6 year physical on Friday, and then it's just the final countdown of SUMMER. I'm excited for them to free up some more hours in the day to just run around the yard.


Ouch, poor buddy. Here he has numbing cream and tape holding it together before stitches.

A woman with an iPad came and kept Jax busy during the procedure, she was great!

Ready for school the next day. His sweetness and positive attitude keeps me going some days.

The night we took the stitches out - day 5 of the injury.

Monday, July 14, 2014

Happy 6th Birthday!

Yup... they're SIX. The years are just flying by on us and they've become actual people. :)
The boys are doing well. Jax will have his growth checked by the Endocrinologist next week and both boys have their 6 yr physicals a week from Friday. We need to check up a few things on them each, but otherwise, I'm feeling pretty confident there won't be specialist-referrals out of this one, woot!
I have tons of photos to share, so enjoy! And there's even a couple videos at the end that show how PROMPT therapy works for Brady, he has something new to say to you all :)


























Family picnic at Uncle Jim's house on Sunday. Grandpa turned 81 the same day the boys turned 6.







Dinner tonight on their actual birthday

Brady looooves Hibachi stir fry!

All the fun presents to try out this week!
Here is Brady being shown HOW to say sounds by physically cuing his mouth. video video