Sunday, October 8, 2017

3rd Grade is a hit!

Well, there went September and we're knee-deep into October already! We seem to have a busier than usual fall this year. September had me out of state for my cousin, Alyssa's wedding in Wichita. The following weekend we were out of town with the boys for Jason's cousin, Nick's wedding.
Jay and I were able to sneak away the following weekend for our 10 yr wedding anniversary. We went downtown Milwaukee to just spend a little time together, and it was really nice. And that wrapped up September!

October is proving to busy as well, but I think November slows down a little bit - so far :)
This weekend we'll be getting our family pictures done. We did them during winter last year, so we're trying to mix it up between fall and winter every other year. The following weekend is my 20 yr class reunion back home in Green Bay, and then we end the month with a big client event that Jason and I are hosting at a large apple farm. What a fun fall, y'all!

Jax had his 6 month checkup with the Endocrinologist to check on his growth and adjust his hGH medication. Jax officially caught up to Brady in height! The doc was so happy to see them the same size and said Jax will probably pass him up a little bit when all is said and done. Brady's growth was stalled at birth - meaning he was small for his gestation, but since he never had GI/Feeding issues and stayed on his skinny curve, we didn't have to intervene. But that also means, he may come in under his intended final height, whereas Jax has the hGH to give him the best chance at his intended final height - so we shall see how that all shakes out. Either way, they are HEALTHY and that's all that matters.

Jason and I did the hearing for the Medicaid coverage a few weeks ago. I don't have a good feeling about it, but we shall see. We worked so hard to get Jax on Medicaid, and half the reason he was accepted was because he's dependent on a feeding tube, but then they don't want to cover feeding therapy (to continue trying to getting OFF the tube). So, if they don't cover it, we will still provide it, which would make it pointless to have Medicaid if we're blasting out our 'OOP' max on our private insurance (sigh) we shall see. What upsets me most is that there are many kids out there who don't get therapies if not covered by insurance... so a kid like Jax wouldn't get the opportunity to rehab to a full eater some day. Will he? We hope so, but it's the therapy that keeps the hope alive!

Anyway...the boys are plugging away hard at school. Jax is doing a spelling test each week. A few of the words are with the class, but most of them are with his special teacher. He really struggles on some words with mixing up the letters or inserting letters that don't have any sound to the word at all, but with repetition and only two words a day, he's been getting all 100%. Which I tape on the wall next to his bed so he feels pride for it.

So far 3rd grade is a big hit and I hope it continues!


A family wedding
The boys with the Endocrinologist.

3rd grade pics - Brady told Jax he looked 'creepy'.

Nana and Papa with the boys at the wedding.


I still find them wrapped up in each other when watching TV or the iPad.

Us sitting in the corner of the gym trying to stay awake since the boys didn't want us following them around during the sock hop.

The boys kept running to us to show us the prizes they won.

Jason and a friend took their boys on the train down to Chicago for the Bears vs Steelers game.

Memories for life.

Wednesday, September 6, 2017

3rd grade!

Summer is done! We had such a fun and eventful summer, so we definitely feel full and are ready for the next season of change.
The boys have settled easily into 3rd grade so far and seem like pros. Jax isn't too bad in the mornings, but I can tell we need to work on a few things again as we get back into the routine. We are so lucky to have decently easy mornings since the bus comes just after 8am.

We had an interesting little loop of events with Jax and his leg. Last week he had complained that his left calf was hurting him and he'd hobble when he'd run. I kept telling him to just wait it out and it would feel better soon. Once we got to the week-mark, I called the pediatrician and she had us come in for an exam. We ended up going in for an X-ray the night before the first day of school. The results from that were good, so after Jax got off the bus that day (still hobbling) we had to go in for another X-Ray of his hips to make sure his growth plate didn't slip (being an hGH). That also ended up being good. So, we assumed it was a pulled muscle and wanted to see how he was after the holiday weekend.
Enter Monday/Labor Day... Jax came in the house late morning unable to WALK! Jason and I were shocked and finally worried. I had my pediatrician paged and she had us go to the ER. Once we were there the doctors were concerned as well, so they did a full blood work up and more X-Rays. After about 5 hours, the doctors and I were able to get the story from Jax (a bruise formed on his knee) that he was running in the yard and fell and hurt his knee.
(sigh)
So... while his calf was still mildly sore, he fell on his knee causing the inability to walk - two different (most likely) benign issues.
With a little ibuprofen and a night of staying off his leg, he was FINE for school in the morning. He is still hobbling slightly from that darn calf, but we're not very concerned. The ER doc assumes Jax's muscle was pulled and his muscle tone is just taking a long time. Jax will see his endocrinologist for his 6-month check in 2 weeks, so we will certainly circle back around to him.

This kid.

So my little boys aren't so little anymore. At dinner, I asked them all about the kids in their class, and who were old friends, and who were new friends. I asked if there were any cute girls, and Brady's response,
"Mom, that's so inappropriate to ask me. I'm not ready to talk about it."

((blink blink :::stare:::))

Ok then.



I cleaned out the supplies and made a large donation to hurricane Harvey kiddos - we hope it helps!

The boys enjoying some go carts on the last day of summer (it was chilly outside!)

Trying to see the darn eclipse on the cloudy day!

Last days of summer fun.

We saw an awesome Lego display at the mall. We toured the entire place and saw tons of different US buildings!

Jax got a new pair of eyes!

A super cool birthday party!

Talk about a neat birthday party!


There was ONE sunny warm day to see the pool!

Brady at his open house!

Big boy desks!

First day of 3rd grade

They were pretty excited


So were we!

New fro-yo place across the street!

Fun annual Labor Day party. We found all the kids watching a movie projected on the garage door!

Jax and that darn leg.

Wednesday, August 9, 2017

Summer Goals

The kids are really enjoying the last part of the summer. We always keep our goals in mind as well, which we seem to be on a decent pace with.

Goal 1: SWIMMING
The boys have started level 3 swim camp this week, so they're finally 'learning to swim'!! It's kind of a pain to haul them (and shower them) every single day, but it's really the only way I see them learning. They've always needed constant repetitive coaching for many of their developments and this is certainly one of them.

Goal 2: Learn how to tie shoes
I've got one out of two kids tying shoes now :) You can probably assume which one has caught on. The other kiddo is struggling pretty badly, but with his fine motor issues, it's not surprising.

Goal 3: Read the 3rd Harry Potter book
We are also half way through the book! We are on pace to get to be able to watch the movie before school starts!

Goal 4: Jax's eating
Well... I hate to ever make this goal, since I have little power over this, and it's also not just a kid having a discipline issue. But, we also always want to keep up the effort to some day hit the ultimate goal of being a full-time eater. We attend feeding therapy every single week and also continue with the plant based tube-feeding food. Jax was REALLY doing well and I feel like he's sliding back just a bit again, but we will continue to always try really hard and hope for the baby steps to continue.

I've also reached a personal goal. I wanted to find a part time job this fall/winter (other than doing bookwork and HR duties for Jason from home). Last month, a past work colleague referred me to an open position for contract work with a small non-profit looking for help with their operations/marketing/admin. I didn't want to pass up the opportunity, so I submitted my resume!

I met with the board of directors and we really clicked. It's for the Shaken Baby Association, so the subject matter of children with disabilities (and really preventative this is) really pulled me in. I was offered the position this past week, and I accepted! I'll begin in mid-September. It's a tall order as a part-time home based position, but I'm ready for the challenge.

(Whew!)

Enjoy some end-of-July and early-August photos!


Visit with cousins before they went back to Texas

Jason and the boys caught a Brewer game one afternoon

Attending a petting zoo at a client's veterinarian clinic.



The boys won figit spinners, and you'd have thought they won cars.

Loving up on Piper

Baseball with Aidan at Nana and Papa's

And basement-ping pong

And dinner games

Jay and I FINALLY got to a fun summer-night dinner with friends

My Nanners the Shanners

The boys picking out some end-of-season flowers with me to replace some overgrown pots. They seriously crack me up.

An example of Brady's Lego talent. He put this together rather quickly after receiving it from us for his birthday.

This was Jaxon's which they started at the same time. Brady was so annoyed that he disassembled this and plans to rebuild for Jax. I told Brady that everyone has different things that they're better at. Small parts with instructions requiring patience is not high on Jax's list of enjoyment. 

Fair fun!











Jax made it half way up this year - big improvement!


Brady danced NON stop!

Jax throwing diving rings into the pool for the kids to race and get. I love that so many neighbors belong to this gym to play in the summer!