Thursday, September 25, 2008

Jaxon is coming home...

...on MONDAY!

After a long talk with the neonatologist (again), we've decided that Jax could remain in the hospital for many more weeks. He just can NOT shake the need for that tiny puff of air he's receiving. So we've decided that we're taking him home on Monday with the oxygen and NG feeding tube. I'm scared out of my mind since there's another preemie with big needs in the home, but it has to be done. Jaxon deserves to be home with us and I can't stand him not being here. The daily routine of packing up Brady and driving to the hospital has become emotionally draining, and I can't stand having to call someone to see how my son is doing in the evenings any longer.

I know I can do this, and it will just take some time to figure out a routine. I think the unknown is what's making me the most uncomfortable with the whole situation. I worry about where he'll be when he sleeps and gets his feeds (especially since he has to be inclined). I worry about how to work the oxygen and how to bath him and move him around. How to recognize signs that's he not okay. It will take some adjusting to care for such a tiny man with big special needs, but we'll figure it out and hopefully he'll thrive because of it.

Wish us luck!

24 comments:

Harris Boys said...

good luck. I think you are making the right/best decision for your family.

SSU said...

Although my daughter wasn't a preemie, she did come home on oxygen (1/32 of a liter). Your fears are similar to what I faced. I remember before leaving the hospital with her, that they went over the signs with me. They made sure I knew what to look for. Hopefully once he is home and grows a tiny bit more he can get off the oxygen and the feeding tube!

monica said...

That is wonderful news! He will do wonderful at home and you will do even better as a mom caring for him! Congratulations!

Laura said...

Hang in there, you can do this! And feel free to let me know if you have questions. Our boys sleep in their bouncy chairs for reflux. And we put a water noodle under the mattress for the incline when they do sleep there. He will be on an apnea/brady monitor too so you will have that extra security blanket. You're going to do great and it will be so much better having him home. And the best part is you get to wean him off the oxygen yourself which is a really rewarding experience. Big hugs!!! Yaaay Jax! You're going home!

the schirano triplets said...

what great news!!! you will do fantastic with all of his needs once he is home! i know it is scary, but he will thrive at home! and so will you!

Kelly said...

Im more of a lurker from the nest but I have been following your story for quite a while. I am SO excited for you and for Jaxon to finally come home.

You are going to do a great job taking care of him. You already know him more than you think and having him home will bring you even closer!!

lovealways6565 said...

YES!!! I am soo excited for ya'll! Good luck!

Danse said...

I am so glad to hear he's coming home. You can do this.

Good luck with everyhing!

Adrienne said...

Great news! I will keep you and your family in my thoughts and prayers!

K. said...

This is great news for all of you. You have done such an amazing job taking care of your boys--I know you'll be able to do whatever Jax needs so that you can all be together. Best of luck to you.

~BIC

april said...

You can do it! You'd walk to the ends of the Earth for those two little boys. This will be a breeze if it means having him home! Hang in there. Thinking good thoughts for all of you!

Kristin ("pmkmp" from the nest) said...

I know you can do it! And I think you're right, he needs to be at home with mom, dad and his brother! Hang in there! I'll say an extra prayer for you all!

Mary said...

How wonderful! I have no doubt that you can do it! Good luck!

Anonymous said...

i just wanted to say i have been following your story since you first got pregnant (i lurk on the nest). i was also pregnant with twins and had mine a few months before you had jax and brady. we did not have to come home on oxygen or an ng tube..i would have been petrified if we had--but i am sure you can do this. it will be hard, but even my hardest day has been easier than the time spent in the nicu! good luck!

Anonymous said...

That is great news! I'm sure things will work out just fine and Jax will flourish at home. Congrats! -SFNewzGirl from the nest

♥RedRose101307♥ said...

yay!! i'm so happy that your little man is going home to join his brother!! best of luck to you and your family!

Lindsi said...

Yeah for Jax coming home where he should be! I am soooo glad to hear he will finally be home with his brother, mommy, and daddy. When our babies had reflux issues we let them sleep in bouncy chairs, swings, and boppy's (supervised). It did wonders for them. You are an amazing, strong, and determined woman Annie...and you CAN do this!

Amanda said...

Yay JAX!!! You can do this this. Will it be tough? Of course? But your baby will most likely do SO much better at home since he is with his family. I am sure it is scary, but as his mom, you are the best possible person to take care of him and this will all come together perfectly!! (als1124)

Shannon said...

This is wonderful news!! I know you can do it Annie! One of my friends had a son who had to have a pulse Ox on so that we could monitor is stats(O2 and heart levels) Maybe that would be something to look into for the first few weeks if your concerned.
Congratulations!

Jenn said...

Good luck Annie! I know you are a strong mommy and you can do it :) I'll be thinking of you and sending good energy your way! Love you!

Heather said...

I'm so happy for you, Annie! Best of luck and even though it will be tough, I know you will do great! Congratulations!

Eris1995 said...

This is such great news! I am so happy that Jax will finally be able to come home. You are going to do great!

Linda said...

Tons of good thoughts and vibes to you and for Jaxon. I bet he'll thrive at home with his family near him at all times.

Alicea (mnbride1013) said...

Congratulations, that's awesome news!! You'll do fine, you have a wonderful motherly instinct already. Good luck!!