After a long talk with the neonatologist (again), we've decided that Jax could remain in the hospital for many more weeks. He just can NOT shake the need for that tiny puff of air he's receiving. So we've decided that we're taking him home on Monday with the oxygen and NG feeding tube. I'm scared out of my mind since there's another preemie with big needs in the home, but it has to be done. Jaxon deserves to be home with us and I can't stand him not being here. The daily routine of packing up Brady and driving to the hospital has become emotionally draining, and I can't stand having to call someone to see how my son is doing in the evenings any longer.
I know I can do this, and it will just take some time to figure out a routine. I think the unknown is what's making me the most uncomfortable with the whole situation. I worry about where he'll be when he sleeps and gets his feeds (especially since he has to be inclined). I worry about how to work the oxygen and how to bath him and move him around. How to recognize signs that's he not okay. It will take some adjusting to care for such a tiny man with big special needs, but we'll figure it out and hopefully he'll thrive because of it.
Wish us luck!