He will remain on oxygen until SPRING. Yes...you read correctly. Hopefully at his 6-8 wk checkup with the respiratory team, they'll only have him on the oxygen at night while sleeping, but I was told to not get my hopes up (that's impossible). He doesn't need the oxygen to survive, he needs it so he doesn't have to work so hard at breathing...they say he'll grow faster with it. At least we know we can have it off him for baths and a few other things, and he'll be fine.
They are also very concerned about him over this winter with RSV season coming. His lungs could not handle a simple cold at this point. They think the extra boost of O2 will help keep him stronger. Jason and I couldn't tell you all how many lectures we've gotten over the past 3 months about RSV season and how we have to quarantine him as much as possible. "NO holiday parties this first year"....we guess we need to accept that now...sorry family....we're bummed, but it's best for the babies. We can't wait until spring and everything can start to feel normal.
I picked up Dr.Brown's bottles for him to try and he's doing FANTASTIC with them! He took 25 out of 40ml's all day for me today by mouth. I'm so excited to think we're REALLY on the road to become NG tube free. One less tube for that little guy would be so fantastic.
Tomorrow we'll be receiving his pump for his night feeds and a wedge/incline for him. We'll be training on how to use the pump and oxygen (no candles or fires in the house this winter!) and getting all his meds in order. We'll be cleaning and getting everything as ready as possible and bringing our little man home for good hopefully!