Thursday, October 9, 2008

FTT...

That is an acronym that I wish I didn't know. 

"Failure To Thrive" due to extreme acid reflux and prematurity.

That is what the G.I. specialist at Children's Hospital wrote today which landed little Jax back into the hospital as an in-patient today. Jaxon had an ultrasound done and everything is normal. After a long exhausting day at the hospital with the specialists/dieticians/nurses, it was clear that Jaxon needs to be in the hospital right now. He is in a crucial developmental stage, and his current care plan at home was not allowing him to thrive.
The new care plan in the hospital is to adminster his formula from a pump (rather than hand feeding into the tube that gravity activates) that gives smaller doses throughout the day. He'll get bottle-training only during the four daytime feeds, and left to be fed only from the tube at night to help save calories. He has to be on his left side in his inclined bed, and he's starting a new medication called Reglan. This medication is supposed to help the stomach drain quicker, allowing food to pass faster hoping for less ability to throw up. The hospital wants to try this new plan and medication to help jump start him and focus only on his reflux/weight problem.
I felt like a zombie leaving the hospital with an empty stroller...
Please continue the love and prayers.

Thought I'd end this with some happy memories of the last few days I had with Jax at home:
His first bath at home
Brady trying to show him that the bath can be fun...

5 comments:

Katie said...

Thoughts and prayers to you all and to sweet baby Jax. I imagine you all are heartbroken to not have him home right now but I bet he is in great care and they will get him gaining weight and keeping milk down. That sweet baby will be getting chubby cheeks in no time at all! Lots of hugs from our family to yours.

rachael said...

sending lots of prayers to you and jax...

ugabrat said...

Sending lots of love and prayers your way. I am hopeful that Jax will be home soon. And he will be growing strong every day.

Mary said...

Sending lots of prayers that you can have him at home with you permanately very soon!

monica said...

Sending my thoughts and well wishes to you...keep strong.