Tuesday, October 7, 2008

Update

Jax has been referred to a pediatric g.i. specialist at Children's Hospital. They are looking at appointments for next week. I've received many great tips/advice from all of you and I've written them all down. I'll be speaking with the pediatrician again tomorrow about the upcoming appointment as well as some of the advice from you all.
He seems to keep his food down decently well if he's laying belly down on my chest while I'm sitting up. So as long as I have a helper at the house for Brady, I can hold Jax like that for the 2.5 hrs he requires to keep the whole bottle down. I'm going to try sleeping on the couch with him so I can sit up with him in that position while I "try" to sleep and tube feed him slowly. His feeding process is now about 1.5 hrs long in order to get a bottle to stay down. He was weighed today by the home nurse at 5 lbs, 5 oz. He hasn't gained a single ounce, but he has maintained his weight at least. The nurse called Brady a "truck" and he weighed in at 8 lbs, 8 oz. She weighed him just for fun since he no longer gets in-home nursing assessments.
So far the doctors/specialists/nurses do not think Jax has a lactose intolerance or any allergy problems to his medications. If he had any of those things, he would have bloody/loose stools, and he would not "feel better" by a certain feeding position. He has classic severe reflux symptoms for a preemie of his size. He is on Lansoprazole (Prevacid) that helps a little with his reflux pain, and I think the g.i. specialist is looking into a medication for his vomitting. We will be able to rule many things out with the g.i. specialist. The only other medication he is on is a diuretic for his lungs.

Here's a few pics of the boys today (please ignore the vomit stains all over my sweatshirt!)





16 comments:

ajanes said...

I'm so glad you are going to see the GI specialist! That's going to be so much more helpful!

Jennifer said...

Wow they are just too precious

Pam said...

oh my gosh, they are just so adorable! i hope the specialist will be able to help jax so he can catch up to his brother. :)

The Wilsons said...

They are so adorable! I hope that the specialist can help you guys figure this out!

monica said...

So precious! I love all the pictures! There eyes are so open and wide awake! Very cute!

cat said...

I really hope you find some answers and solutions soon. Good luck!

Anonymous said...

Wow, the boys are precious. You are doing a great job mom! Keep up your great spirit. It WILL get better. :)

Anonymous said...

Your boys are adorable!

ThreeRingCircus said...

Oh my gosh, Annie, you can't expect yourself to hold Jax up for that long at each feeding...it will be the next feeding before you're done with that one! UGH. I feel for you. YES...go down the list with the doctors. Get them to help you. There HAS to be something. Ask about Simply Thick!

I admire your dedication to doing what it takes for him. Some moms wouldn't go to the extent you are. Your boys are blessed to have you.

Shannon said...

The pictures you posted are just adorable!

lovealways6565 said...

They are soo adorable!

Becky said...

They are just adorable... i'll be praying that the specialist can help Jax feel better soon!
:) Becky

Jenni said...

The boys are so unbelievebly adorable.

Valerie said...

I'm so glad you found a method that works. I totally understand your frustration. They are so cute.

Mary said...

The pictures are absolutely adorable!

Shannon said...

Aww Annie, they are so cute! GL getting some answers on Jax