Sunday, November 23, 2008
His calories have been increased to 27 per serving, so that's something we're adding to his formula now. He seems to have increased the reflux/vomiting a bit again...but we're still keeping way more down than we used to by venting often. He is still on the continuous pump-feed, which gets increased 1ml an hour each week. We still practice with the bottle 3x a day, and some days are better than others. Jaxon works closely with a speech therapist now to make our goal of complete bottle-feeds within 3 months. The occupational therapist thinks he's doing great. We have activities to do with him now to help him develop quicker. We'll keep on working on all of this!
Both boys will receive their second round of RSV shots this Wednesday at the house. So we're all hanging in there and already dreaming about SPRING!
First professional pictures of the boys will be done on Monday....finally! Pray for SMILES!!
Tuesday, November 18, 2008
The boys had their 4 month check ups on Monday with immunizations. The doctor is very happy with their progress. Brady's head and length is the 50% for his adjusted age, with his weight at 10%. Jaxon doesn't quite make her adjusted chart except for his head at 10%. Their growth scale is the most important and its looking great.
The in-home nurse stopped by today. Here are their current weights:
Jaxon: 8lbs, 1oz
Brady: 9lbs, 12oz
Jaxon officially went over 24 hrs without a vomit or reflux. We've learned the key to his success is lots and lots of venting. So mama gets up every 1-3hrs over night to vent and administer meds. This seems to be doing the trick! Jax is also taking a few practice bottles too. Since he's on the continuous pump for food, it's hard to make him hungry enough to eat much from the bottle, so he's just taking snack-bottles a few times a day. I just want him to remember how to feed from the bottle for now. I want to make a plan with his speech therapist on how to try more. Jax will begin occupational therapy this week as well.
Sunday, November 16, 2008
Jax was able to come home Saturday. It was a bit of a circus at the house the first night, but I think it will get easier (HOPEFULLY) as we get used to it. Jax needs to be vented often....that seems to really help keep the vomiting/reflux from being so bad. Our hopes are that since the NG tube is out of his nose and throat, he'll bottle-feed easier and he'll have less gagging and less stomach acid traveling up his throat. We forgot to vent him after his reflux this morning and he ended up vomiting. So only one reflux and vomit so far since coming home. Neither were as bad as most that he's had.
Both boys have their 4 month physicals/immunizations tomorrow, and Jax will see the pulmonary and G.I. teams on Friday. We're hoping he'll pass the tests and get the oxygen off his face during the day hours.
So everyone cross your fingers for everything!
Tuesday, November 11, 2008
Jax continues to vomit and reflux....this just isn't right. He had two reflux attacks an hour after receiving his Prevacid and Reglan. One attack was so bad it pushed his NG tube right out.
The G.I. specialist team at Childrens Hosp plan to perform an EGD with biopsies on Jax this Friday. We have to have a pre-op physical tomorrow (Wednesday). He'll be staying at the hospital overnight Friday (length undertermined) since he'll be put completely under as a preemie. They're also going to change his formula again until then to Neocate.
I REALLY hope this gives us some answers. He'll either get an NJ tube or a G tube placed instead of his NG tube during this procedure on Friday.
I hope and pray this procedure gives us some answers, and poor Jax isn't poked/proded too much the next few days. Poor kid. Wish us luck.
The boys today
Sunday, November 9, 2008
We then made up some of his original preemie formula through his tube, and he's been sleeping since. I'm about to introduce his next bottle with the original formula to see if he takes it.
We hate to think we didn't give the new formula a good try, but it seems to be awful on him. It makes no sense that it would harder on him. Maybe it was a coincidence?? We don't get it.
Thursday, November 6, 2008
Well, we'll see how Jax does over the next day or two. Does anyone out there have experience with this formula to help with vomitting/reflux? I personally think the tube down his throat is a big factor here.
Tuesday, November 4, 2008
The weigh-in today went much better than I thought it would. Jaxon weighs 7lbs, 9oz and Brady weighs 9lbs, 4oz. I'm soooo happy with these weights. It means that Jax is still hitting his goal of 1oz/day. I guess that when Jax vomits now, it's never a whole bottle like what he used to do.
ALSO...he kept down every bottle yesterday afternoon. He continued his reflux and vomitting early this morning...so I'm starting to think it's a medication issue (he doesn't get any Reglan overnight). We have an appointment with the G.I. specialist again at Children's Hospital tomorrow afternoon.
Cross your fingers for us.
We hope you all got out there to vote today!
Monday, November 3, 2008
I put a voice message into the G.I. specialist's office last night, so I'm waiting for a call back today to see what our next steps should be.