Thursday, July 31, 2008

First step back...

The NICU called us today. Jaxon had a heart murmur. The doctor told us that a valve in his heart never closed (called Patent Ductus Arteriosus - PDA), so he is being treated with Ibuprofen through his IV. It's a 3-day treatment that hopefully works so we don't result in a surgery. Apparently this valve usually closes in the first few days in a full-term baby, and within the first few weeks of preemies. Jaxon's difficult day yesterday gave them the indication that this was the problem and they found it on a scan this morning. So please pray that the Ibuprofen works over the next few days. He will be fed only through his IV for these days as well now.

On a positive note, Brady drank from a bottle today. He drank 3ml which is kinda like 3 drops. So we will work with him on that each day.

Jax with his hand IV of Ibuprofen.

Brady after his bath today (he still hates bath time)
Brady with his first bottle!


Wednesday, July 30, 2008

Update with pics

Brady is off all air and only has his feeding tube in now. We are working up to try a bottle...maybe we'll try a little tomorrow. Jaxon had a tough afternoon today after his bath. Dad tried to hold him right after and his stats weren't great. The nurses thought he might have just been a little over stimulated. I think it stressed me out more than Jax.

Jaxon - 2lbs, 13oz
Brady - 3lbs, 12oz

Jaxon without his CPAP (yesterday).

Jaxon working hard on his pacifier yesterday.
Jaxon after his bath today.
Brady during his bath on Monday...he was NOT happy with mom and dad.
He's happy when we got his clothes back on though!
Back in his "house" and happy as ever.
Brady posing for mom.

Monday, July 28, 2008

He's FREE!

Jason and I had such a wonderful surprise today...Jax is OFF HIS CPAP!!! And they are both steadily gaining weight.

Jaxon 2 lbs, 10.6 oz
Brady 3lbs, 10 oz

Now that Jax is off his CPAP, I have great hope for him to thrive :)
Pictures to come...

Sunday, July 27, 2008

2 Weeks

The boys are about 2 weeks old. They have been little troopers. We are able to "hold" them now, which is the most fantastic feeling ever! They aren't feeding from bottles yet, but they are doing really well with their pacifiers and will be off their feeding tubes soon hopefully. 
Jaxon is still on his CPAP, but improving each day on that as well. He lost some weight, while Brady gained some, but we are figuring out that it may be due to his temperature being swaddled. His calories may be being used to regulate his own temperature, so we're trying a few different things to preserve his calories.

I've included a few pictures below...enjoy!

Jaxon getting a break from his CPAP headgear (preemie clothes don't QUITE fit yet!)

Nana Letts, Auntie Christa, Cousin Anesah, Me and Brady being held for the first time! (wow..looks like I could stand to see the sun a little...)

Brady with girlfriends Krista, Jenn and Claire

Brady being cute...
First time hold of Jax with mom!
Just a sweet picture of Brady on dad (look at those gold locks!)

Friday, July 25, 2008

11 Days Old

The boys are doing well and both had clothes on today. They have both gained a few ounces. 
Jax is still on his CPAP (that hurts my heart) and will probably be on it for awhile yet. He's just so uncomfortable with it on his face. It makes his eyes swollen and his nose/mouth collect a lot of fluid because of the humidity. I really can't wait for it to be removed.
Brady will be feeding from a bottle soon...I can't wait to "hold" one of my babies. The house seems to feel more and more empty every day they aren't here.

Monday, July 21, 2008

One Week Old

The boys are one week old today and doing well. Both boys got their IV's out today, and I got my staples out today...we are all free! They also had the stickers on the sides of their heads removed that were for their billy-light goggles, and Brady's head gear is gone :) Once Jaxon's head gear is removed we will really celebrate!
They had their one-week head scan's done which is an MRI scan of the brain for Intraventricular Haemorrhage (brain bleed) and the score is from 0-4. Brady had zero, and Jax had 1. The Neonatologist told us he would re-test Jaxon next week, but he felt that he was fine. A score of 3-4 is the danger zone, but realistically it's always a waiting game. We feel confident and hopeful for him.
Jason holding Jax for the first time! (Saturday)

Jaxon is a little peanut (Today - he loves his tiny pacifier)

Brady's head gear is off! (Sunday morning, the stickers and IV are no longer on him that you see here)

Brady snuggling with mom (Today - finally able to see his face. Their faces are swollen from the head gear, so it's nice to see what they look like! Hopefully Jaxon isn't far behind)

Friday, July 18, 2008

NICU update 7-18-08

Jaxon taking a nap and about to have "Kangaroo Care" with mom.



Brady being his peaceful self today about to have "Kangaroo Care" with dad.



The boys had such a good day in the NICU today. I was able to hold Jax on my chest, while Jay held Brady on his. Both boys are off the billy lights and goggles (for jaundice) and they're talking about taking Brady off his CPAP soon (his nose oxygen with the head gear). Jax is a few days behind him so that would mean he would follow (which would be great because he really hates his head gear). We're watching a few things, but for the most part things are going well.
They are both eating formula and breast milk through their tubes down to their bellies and doing pretty well with that. Brady graduated out of the micro-preemie diapers into a preemie diaper.
I think the boys have stolen a few hearts already around the NICU :)

Thursday, July 17, 2008

Going home...

I'm going home tonight. Wow...it's been 8.5 weeks since I've been there.
We will have a long visit in the NICU with the boys before I go home tonight, and Jason get's to have Kangaroo Care with Brady.
I can't drive or even walk too well, so I will get a lot of assistance from Jason to come back each day to the boys.
We knew the day would come where we would go home without them, but I can't believe it's actually here.
My heart will remain here...

Wednesday, July 16, 2008

BIRTH STORY

The boys are here! We made it to 31.5 weeks, just a few days short of our goal. I think the boys wanted to determine their own birthdate.
The delivery came as a major surprise to Jason and I. We are the luckiest people in the world to have caught Jaxon in distress on my nightly monitoring on Monday. It was just chance that we caught it.
Jason said goodbye to me as my nurse was coming in to put me on the monitors and about 2 minutes after I was on the monitors, Jaxon's heartrate dropped to 60 (from 140) and would not go back up no matter what they tried. My room was filled with hospital staff and I was being wheeled off to the OR. I had a "crash c-section". I was of course hystarical as they were trying to get my pajamas off, an IV in and my bed was moving at the speed of light. I was put completely under and Jason arrived as both boys were being moved to their own isolate and NICU team.
So begins Jason side of the dramatic evening.
He was rushed to Brady's side to keep him from Jaxon, who he saw as dark blue and not breathing. Jason cut the rest of Brady's cord that was remaining on him and he held him and kept an eye on Jaxon's team who were working frantically on him. I was completely under with a tube in my throat and Jason was going in 3 directions.
When I woke up in recovery Jason took a tiny preemie diaper out of his sweatshirt and told me that each boy was wearing one. I was pretty out of it...I thought I had thrown-up but it was actually me waking up to them removing the tubes from my throat. Jason told me that Jaxon was intebated with a breathing tube and Brady was on room air, and so far they were fine. We were both emotional messes. Jason then gave me the news that my c-section cut was not a lateral line with disolvable stitches, but rather a vertical line from my belly button down with staples. We thought we had the whole operation planned to a "T", but life doesn't work that way.
I've been kinda sick the past two days with the anesthia and drugs, but we're starting to figure out what is working to allow me to sleep and just living with a little more pain.
We want to thank everyone for all their prayers, love and support through this long road. We love you all and look forward to the next long road to get the boys home.


Our little men are beautiful and we are just in love!
Born 7/14/08 10:15pm
Jaxon Wallace 2.7 lbs
Brady Michael 3.7 lbs


Jason changing Brady's diaper (his very first)...look at his face :)


We are getting Brady ready to do Kangaroo Care with mama.

Kangaroo Care....I loved every second of it...


Jason with Jax.


Jax and daddy holding hands.

Wednesday, July 9, 2008

31 Weeks!

It's official! We are officially on the "books" for a c-section on Thursday, July 17 at 8:00 am.
It is still made very clear to us that it could be any day before then if we see reversal blood flow in Jaxon's cord, but so far it has remained stable. He certainly has much less than Brady, so I think he'll be excited to EAT when he gets outta' there!

We will have a final weigh-in of the boys next Wednesday the day before delivery, so it will be very interesting to see how close they are to the approx weights given to us.

7 weeks down in the hospital...one more, plus recovery to go!

Saturday, July 5, 2008

A few Jason moments...

Jason and our nephew Aidan...look at those ears!
Jason brought up one of the carseats so I could see it.

Proud of his finished product!

Wednesday, July 2, 2008

30 Weeks Today and Growth Scan

One week closer to our goal!

We had a growth scan today and they are definitely growing. Little Jaxon is in the 11th % for his gestational age - so the doctor is getting a bit edgy about that. He said anything under 10% means IUGR (Intrauterine growth restriction) and can mean that he isn't thriving properly anymore. So it seems that we may be lucky to have our last 2 weeks of growth to our goal. We'll keep doing their BPP's every Mon/Wed/Fri and their 3 monitorings a day. Hopefully things remain steady.

Estimated Weights:
Jaxon - 2 lbs, 3 oz
Brady - 3 lbs, 2 oz