Jaxon's surgery went well. He was obviously not the happiest baby in the world for awhile after, but he's coming around. The doctor said the EGD scope showed a very healthy baby inside, but he did find one culprit. Apparently the pyloric sphincter was pretty tight around the J-Tube. This is the ring between the stomach and the intestines. So basically the J-tube filled up this hole almost completely with no way for stomach secretions and the such to go anywhere. This isn't Pyloric Stenosis which is more of a swollen muscle in comparison to this. So the doctor said he widened it (I think with a balloon) and then injected Botox into it to keep it relaxed and open. This should now provide a larger opening around the J-Tube for stomach contents to pass through the sides.
A larger gaged G-Tube was placed (so the healed hole through the skin was dilated, so that's little raw now) so now stomach contents should be able to vent out thru this tube (remember the J goes into the intestines and the g goes into the stomach). So we tested the tube out immediately and just wrapped a diaper around the end of the tube with the G-port open (Pedialite was going into the J-port)...so basically Jax will be fed continuously through the J-port while the G-port is being vented. We had success! We opened the diaper and it was filled with stomach grossness! I was so happy I took a picture!
So we're hoping that since his stomach can naturally get rid of the stomach secretions through a wider Pylorus and a vented G-port, he'll heave and retch less until we can get him to outgrow this! Just think of it as he'll be fed all the time into his intestines, all while his stomach is remaining as empty as possible until the day it's not so sensitive and we can start practicing eating by mouth all over again...I'm hoping spring, but who knows. I'm also hoping Jax can come home tomorrow! Thanks for all the well wishes and prayers, we really appreciate all the support.
*Oh I should say, Jax hasn't started any formula back up until after 8pm this evening, so the real test will be the next 24 hrs!
Update: I also found a clip online last night while researching the use of Botox in the stomach for vomiting issues and found this: http://www.healthcentral.com/acid-reflux/surgery-2197-109.html
This helped me make my decision to go forward the Botox.
After surgery, taking a snooze (with the drugs still hanging in his system I got him to lay his head the opposite way of his torticollis - he took the bait, sneaky mommy!)
Showing his new tube and all that GREAT stomach drainage!
Notice the crazy ports on the end of this thing..seriously, click on the pick to blow it up and check that honker out.
Girlfriends Heidi and Molly.