Well, our primary specialist is baffled. He truly believed Jaxon would be somewhat better by this age. After a long appointment of talking back and forth and some moments of just silence and looking at Jax, the doctor decided to bring in another specialist to talk to us about some other tests. But our primary specialist wants Jax to get an MRI to check for neurological disorders that may be causing the vomiting (can you hear my heart sinking?).
So the other GI specialist came in to talk with us. We've of course met this man many times over Jaxon's past hospital stays. He has suggested an intestinal motility test be done. This would tell us if Jaxon's intestinal nerve endings are working correctly or not. Vomiting without food in your stomach, but in your intestines is a symptom. There are some big words for all this, but from what we understand, they are now looking for a disease that he could possibly have. The doctor said the good news if he tested positive for this, is that we have an answer. The bad news is this would not be a good diagnosis. He could quite possibly never eat again. This specialist does not believe that Jaxon's current symptoms are reflux...he flat out said, "this isn't reflux".
(taking a deep breath to finish this post...)
I've scheduled his MRI, and of course the first open date was May 11...and the motility test takes 6 weeks as well. We may get lucky and get in sooner for the motility test since we live in town. Apparently this Children's Hospital is one of only 3 in the country that performs this test, so people fly in from everywhere for it. If some one's test can't be performed for whatever reason, we can be there same day to take their spot.
I hate the fact that we had to leave the hospital today with no way of helping Jax, and knowing we have to wait 6 wks to do two different tests, that either could have devastating results. I'm doing my best to stay positive and hope for the best until we know for sure. It's so hard when you watch him heave, retch and vomit...your heart tells you, "this isn't right".