Tuesday, March 10, 2009

So close, yet so far away

The pulmonary specialist from Children's Hospital called me with Jaxon's results. She said he averaged 93% and he needed 94% to pass. She asked if he was up crying or sick at all. He was up the first hour crying off and on because Brady was up screaming his head off. I told her he's a little congested right now, and he wakes up through the night heaving because of reflux. Obviously every one's oxygen goes down when trying to throw up. The time change wasn't helpful with this test at all since the boys are out of sorts at the changed bedtime. We had so many things working against us.

She let out a loud sigh, and felt really bad. She said she wished the machine started after he was asleep, but know that's impossible to do. She said he's not in danger since he was SO close, but anything under 94% is a risk for respiratory infections. She said to try to put it on, or in the least when he's sick or congested.

Jax has an appointment with Pulmonary on April 3. She said she'll review him and order another night study after that. I just want one less tube for this baby, and some sort of step forward.

5 comments:

Laura said...

It will happen. You know he's right there, she's just being cautious. Can she reorder the study sooner than April 3rd? So close!!

Danse said...

I can't even imagine how draining this is for you. Wishing you and Jax all the best.

Heather said...

Oh, crap. I am sorry. I was really hoping this would be good news for you guys. He really is so close. Saying a prayer that these are the last few weeks of it for you and he does well with his next test (no interference Brady!!) and passes. (((hugs))) sweetie.

Amber and Matt said...

that really sucks about the O2, I really really hope that he can get that thing off soon! One less plastic thing!

Becky said...

I remember these days. Those monitors for the overnight test are EVIL! I hope that he will be off soon but just try and remember that it is what is best for him. I KNOW it is hard. Eli was on O2 for 5 months. I remember wanting him off so badly and then when it happened we kind of missed KNOWING that he was getting the help he needed. It was like the NICU. We hated them being there but then when they said we could go home we were a bit scared. Hang in there!