Wednesday, January 13, 2010

Alternative Medicine

I've had a lot of people ask me for more information about the alternative medicine route and how it works. The best way I can explain the route we've taken, is to give a brief history of our path. We were referred to an alternative pediatric MD. This means this is a medical doctor who specializes in alternative/holistic alternatives like natural supplements.

We filled out paperwork and then the doctor recommended specific lab work to be done. We ordered in the test kits, and followed the directions (which can be VERY specific and detail orientated) which was stool, urine and blood. The blood work had to be performed at a local lab. Once the specimens were collected, they were overnight delivered to the independent lab that processes these specimens.

A full report is then shipped to the doctor office. We are then sent a copy of this report and instructed to schedule an appointment either by phone or in person to review the results and discuss the recommended course of actions of natural supplements.

We then started on a long list of supplements, adding one every 4 days or so working our way all the way down the list. We would check in with the doctor and report how Jax was doing and then the doctor recommended more tests. The new test kits had to be ordered in, labs drawn and sent out again. After weeks/months of waiting for results, we would have another meeting to review those results with new recommendations of supplements, which leads us to where we are now.
To review our experience so far, we started with the first supplement the third week of August and was on full force of the supplements around the beginning of September. Jax has been on full supplements for about 4 months now and these are the changes we've seen:
  • No hospitalizations (which he was averaging every 8 wks for the first year)
  • No more laxatives
  • No need for antibiotics due to intestinal bacterial infections (he was averaging an antibiotic every 9 wks once diagnosed)
  • Vomiting episodes have gone from an average of 8/day to 4/day (Aug-present)
  • The rate at which we can run his pump at is able to be higher. Since Jax can finish his food faster, he can be off the pump for longer periods of time (the faster the rate of food he can take, the faster he can finish the amount he needs in a day).
I've had a lot of people ask me how insurance works with alternative medicine...well it doesn't really. Jax had his acupuncture covered since it was performed by the Pain Management Team at the hospital, and it also covers his chiropractic work (which helps a lot as well). As for any meetings with the alternative doctor, that is billed by the MINUTE, and all supplements are 100% NOT covered. So it is a big investment of money and of course time. You have to be committed completely and follow exact instructions to really give it a real try. We've taken Jax off all motility drugs, and he only takes Prevacid as his only prescribed "drug"...which is the one thing covered by insurance. I have to also say, it's helpful to have specialists and doctors who support your choice to take this route. I've always cleared everything with Jax's specialist, who in turn gives me the thumbs up and says it can't hurt. But please rest assured, his specialist does have a copy of every alternative test and supplement that Jax is on.

I've learned to look back over months and not days when I get frustrated with watching my child go through this every day. So blog entries like this one, can be helpful.
Hope...it's what keeps us going.

This is Jax's current med/supplement schedule:

Wake up:

·      Prevacid (7ml) *Mix separately in 5ml’s water

·      Artichoke Extract (1 cap)

·      UBQH (1 cap)

·      Digest (1 cap)

·      B-Complex Plus (1 cap)

·      Buffered C Powder (1/4 tsp)

·      Serotonin Support Powder (1 small scoop)

·      Magnesium Mineral Water (1 tsp)

·      Zinc Mineral Water (1 tsp)

11:30am:

·      Olive Leaf Extract (1 cap)

·      Silymarin (1 cap)

·      Digest (1 cap)

·      GI Boost (1 dropper full)

·      Cod Liver Oil (1/4 tsp)

·      Zinc Mineral Water (1 tsp)

·      Calcium Mineral Water (1 tsp)

 

(Dinner Time - After being off the pump):

·      Healthy Start Kit (3 bottles in fridge - 1/2 cap of each)

·      Immune Balance & Detox Support (1 dropper full each)

         **Needs to be off pump for 1-2 hrs to take this

6:30pm:

·      Prevacid (7ml) *Mix separately in 5ml’s water

Bedtime:

·      Artichoke Extract (1 cap)

·      Digest (1 cap)

·      GI Boost (1 dropper full)

·      Buffered C Powder (1/4 tsp)

·      Serotonin Support Powder (1 small scoop)

·      Calcium Mineral Water (1 tsp)

·      Magnesium Mineral Water (1 tsp)


**I hope this helps someone out there to have their own hope...

3 comments:

Laura said...

Wow, again as always I am completely blown away by how amazing you and your husband and your children really are. And, maybe I'm just overtired today, but this post brings me to tears to see how great things are finally going.

Questions: Can you pre-mix the supplements in one container to administer all at once through the J tube? Or do you have to give each one separately through individual syringes? As the boys are so mobile we are lucky we only have one syringe of Prevacid to give because that's about all the time they sit still for.

Also, how do you go anywhere? I would think you have a whole separate bag of supplements and syringes to take wherever you go just in case you are out at the time you need to give the meds, plus I'm sure some of these have to be refridgerated. So how do you manage getting out and administering these if you're not home?

If you were going to say any one supplement (or maybe two) seemed to make the biggest difference which one would it be?

Crap, these are a lot of questions, I should just email you.

Amy said...

Amazing! It's awesome to see what a difference that has made for Jax. I am SO glad Jax and Brady have you as their mom! The way you love them and fight for them is beautiful to see.

Jen said...

That is awesome.. amazing. The positive changes all of these things have made for Jax is just amazing!! Thank god he has a personal assistant like super mommy to keep it all coordinated!!
You rock!
xoxox