Jax has a lot of tissue prolapse coming out of his stoma site from all the coughing and heaving he did last week. I'm applying silver nitrate sticks to help it, but it makes the worst bloody mess all over his shirts and stoma dressing. I hope it heals up quickly!
We have a busy few weeks with some upcoming appointments. This week Jax has his physical therapy review to see if he needs to continue with a new pair of Sure Step foot braces, and he'll see the chiropractor again, and also the speech/feeding therapist. Next week the boys will be meeting with the county school rep to talk about the boys transitioning to developmental preschool in the fall if one or both meets the requirements to attend. And then of course the usual chiropractor and speech/feeding therapy sessions later next week. The following week after that, Jax will be seeing the GI/Feeding Team at Children's Hospital. They'll determine if he's medically stable yet to attend the inpatient feeding therapy.
Since Jax has taken such a big medical hit with his pneumonia, I'm nervous he won't show a big enough weight gain, or volume tolerance in his tummy by that appointment. Which means we'll have to go another 3 months before trying to get in again.
As usual, we shall see!
Here are a bunch of pics, enjoy!
Brady is pretending to be the muppet on Play with me Sesame that bangs on her piano. It reminds me of Beethoven from Charlie Brown.