He said that he is not looking at this as a step back, especially since we've been sitting idle for SO many months. He thinks that a big push of weight gain over the next two months will actually set Jax up to move forward with his oral feeds. It obviously feels like a big step back using his tube so much more again, but hopefully in the long run, it's helps things along. Trying to be positive!
The boys finally have their big appointment for a Nasal-endoscopy with the Cleft Palate Team tomorrow morning. If they cooperate, they will each get a small tube and camera placed through their nose that will go down to the back of their throats. Then a speech therapist will have them do some voice exercises while the doctors examine the function of their soft palate and throat. They will also examine for any other issues that can't be seen from just looking in the mouth.
This scope may find an issue adding to their speech disorder, or there may be nothing wrong at all back there. We were referred to the ENT from the boy's speech therapist at school, and the ENT said the boys sounded like they had air escaping through their nose when speaking, leading to the thought of Hypernasality, and they needed the nasal-endoscopy from a specialized team to examine everything.
I hope and pray the boys cooperate and they're not too scared or in any pain with the whole process. I assume Jason will have to walk one boy out while we perform the scope on the other one. Wish us luck... I have no idea what to expect...
|My pile of hams|