I spoke to the GI specialist and Dietician at length about possibly using Human Growth Hormone on Jax. He has his Endocrinologist appointment the first week of July, and I'm trying to gather as much info as possible in case they say his growth rate is still at a major deficit. Both the GI specialist and Dietician agreed that it would make him grow taller, but to not be afraid that he wouldn't gain weight along with it too. I was nervous he'd grow taller and fall further on the height-to-weight ratio. The GI specialist said that he knew the qualifications for HGH are pretty strict, so if Jax fell into the red-zone and qualified, it meant he had some pretty stunted growth, so nothing is taken lightly or treated flippant in that specialty.
In other news, I'm able to get Brady to say 'mamamama' each time I ask him. When we slow it down to a straight up 'mama', he's now saying 'mamnman', so he's close. He still calls me 'gaga', which is funny since his speech therapist made a chart with a photo of Lady Gaga, and a photo of me and is trying to show the difference, hilarious!
I received a call back from the speech and hearing department at Childrens Hospital for summer speech sessions. I need to fax in the boy's IEPs next Friday (when we have our meeting) for them to get on the schedule. (An IEP is a plan set for children who require special services through the school system)
So I think we'll have a busy summer, but it's a critical time for the boys to be moving on to their next goals in these areas. Jax will have Feeding therapy, Speech therapy and Occupational therapy and Brady will have speech therapy from the school district and from the hospital. I'm pretty sure we'll be outside the rest of the time!
Today is Jason's birthday and Jax has been OBSESSED with birthdays lately. Every single morning he asks me if it's his birthday and if he's 5. Well today he told me he was excited for Daddy to come home and open presents because he's 42. Hilarious. He's off by 10 years, but it's too cute.
|We had whip cream and strawberries with Jason's birthday cheese cake. Brady got his first mouth full of whip cream! Jax didn't want it anywhere near him!|
|He couldn't stop laughing!|
|Singing Happy Birthday and Jax trying to figure out how many fingers showed "32"...|