We were able to get Jax medical attention at the first sign of the seizure thankfully, so he was given treatment in time to come back. He hasn't suffered any neurological deficits or motor function and snapped back without any IVs after 8 days. If Jason hadn't been up changing him at that moment, the outcome could've been very different, so for that, we are ETERNALLY grateful for that timing.
We came home Saturday afternoon and have been re-adjusting back to normal.
I think I thought that once we were home, settled and had a night of sleep in our own beds, that everything would be back to normal.
Jaxon himself is doing fine. He is back to his smarty pants wit while laughing, yelling, running and being his great little self. Brady has his partner in crime back. We took Jax up and down the stairs a few times and he is completely independent once again. He does suddenly stop, hug me and say he loves me more often, so I know he feels it too.
Jason and I still feel it though. Being back home at the scene and trying to just go about our day taking care of the boys and the house... it's odd. It's hard to explain, but it's odd. It feels haunting. Like this constant reminder that it can happen randomly and fast.
I have such mixed emotions about it because I am unbelievably grateful, thankful and humbled by it all.
We are so BLESSED.
So, we're both trying to not linger on it or let it ruin our healthy days with these little trolls, but wow... it's really taken us both aback. Almost like we were shoved and we've been stumbling backwards this entire time, yet not falling.
I'm trying to give myself a break and realize it literally just happened. But closing my eyes makes me relive... and go over the details of what was different so 'next time'... yet, there shouldn't ever be a next time we were told. Although, we were sent home with a new device to check, just to make sure. And IF it happens again, we'll do more testing... (sigh)
Neither of us feel like ourselves yet, so I'm hoping with more time and normalcy, we will. I mean... did all that seriously just happen??
I was supposed to be starting a new position in a new division last Monday (my 'meetings division was sold and I was kept for a different division - luxury vacations). I have to find a way to be able to focus on my new role - thankfully they were understanding it would have to wait a week - but that's all about to start up tomorrow. All new programs, systems, clients, reports etc etc - gotta get my game face on!
Jason hasn't had a normal full week of work in almost a month between all four of us having the flu over the holidays and then this.
We need some 'boring', although it's been kinda boring with all the sickies!
Jaxon will have a physical with our pediatrician tomorrow to be cleared for school, and his teacher is going to meet us at our home to have a meeting about all of this and how school will go for him.
I'll update how the week goes for all of us. I have much better photos for you to see of our healthy little elf!
|Jason and Jax watching the Packer game Sunday night. Jax slept through most of it and awoke for the end - the roughest part!|
|Getting his hair washed and not quite himself yet on Sunday.|
|They wrapped him up like a burrito with warm blankets after this and he slept like this for over 4 hours.|
|With all that sleep, he had a burst of energy for an hour just in time for a visit from Brady for some video games. He woke up to a balloon party which made his face light up. The gift shop opened this day :)|
|A tutor from the hospital-school was working on letters/numbers/reading with him.|
|Jax had an OT for the week that worked on strengthening his motor skills. Here he worked on sitting up and reaching for extended periods.|
|Doing his activity 'homework' to work on that fine motor skill!|
|More OT homework through the week.|
|This is just funny. Shannon brought a monster truck hat that was a big hit.|
|Because it he wore it ALL night, even through dinner :)|
|First walk down the hall with his physical therapist!|
|He's just realizing we're up on the 11th floor and can see a lot of the city.|
|Just one of the girlfriends he made at the hospital, this is Nikki, one of his fav nurses!|
|LUCKY Jax got a visit from ex-Badger and current Packer player Scott Tolzien!|
|He found out Jax had a twin so he included him in on the gifts!|
|He gave me a hat :) He could tell I was fumbling to put my unwashed hair back as this famous athlete was in the room all of a sudden - kinda hilarious!|
|This was the photo that the photographer emailed me that they may use on their website - how HAPPY does Jax look??|
|Sunrise by Miller Park the morning I knew we'd be discharged since Jax did well that last night...|
|On our way!|