Wednesday, May 20, 2015


You don't realize how much you do in a week until you have to sit down and think about it and then type it!
Last week the boys wanted to go to their school science/book fair one evening. They are so obsessed with books that I'm scared that one day it will suddenly end.
To piggy back on that note, the boy's PALS report (phonological awareness and literacy screening) came home yesterday. This is used to measure knowledge of letter sounds, spelling, concept of word, word recognition in isolation and oral passage reading (clearly I copied that sentence, omg). It's used to measure a child's needs for the next year of school.

Both boys improved leaps and bounds from their fall-scores. Jax scored almost perfect with 100/102 and Brady did amazing with 83/102.
As expected, Brady's area of struggle was with 'letter sounds' and 'spelling'. Both of which are extremely hard for kids with severe Apraxia since he can't make the sounds correctly to hear the letters to be used. The kindergarten teacher warned us of this a year ago saying that reading isn't the struggle so much as spelling, and she was right. Although, we're still very fortunate that Brady is doing as well as he is in the subject given the severity of his speech disorder, so we are grateful and of course SO proud.
I'm mostly grateful that there's one very important area of school that the boys, especially Jax, doesn't have to struggle with. The simplest things for most kids is an obstacle for him, so I have at least one area to let him shine in.

The boys had their very first REAL little league game last Saturday. The kids were excited and nervous and that pitching machine seemed faster and closer than in practice! The kids were amazing and most of the hitters who struggled in practice got HITS at the game. They all learned that ALL batters will strike out off-and-on regardless of talent, that's just how it is. The GRASSHOPPERS had 3 runs and a few plays were actually made. We were shocked! If there were scores and winners, our team nailed it, but there aren't so just a bunch of high fives instead :) The boys play again tonight and then off for the holiday weekend - they are very excited.

On the medical-end, Jax is on his 'hunger-inducing' medication in full force this week and even taking it at school before lunch. We're really hoping to see some positive change. We've gone back to using the 'Reward-Plate' in the mornings to help keep the stress down. He knows exactly how much he has to eat to get to the end, with a small prize. Which has been coins and recylcled trinkets so far, that he totally called me out on - that kid and his MEMORY, DARN IT! I'll keep an update of course!

Jax also had his 6-month asthma specialist appointment on Monday. We cut his daily steroid in HALF to see how he does this summer and we have hopes to keep it that way in winter. We're cautiously optimistic and need to get him on LESS daily meds to help with his long-term health, growth (they stunt growth) and fine motor control (they make him jittery). But his lung-health is most important, so we are going slow and steady.
The doc wants Jax to take an Albuterol neb breathing treatment before warm baseball games and practice this summer, which should help ward off any asthma attacks from the heat. He also gave me some tips on how to support him with our July-trip to Orlando. Lots of AC-breaks, lots of water and lots of sleep overnight. This kid!

The house is coming along! Our master bath repairs and front lawn are next.

The boys enjoying the book fair

Trying out the Robotics-Team creations.

First little league game!

Some of the batting helmets - too cute!

Jay supporting Brady as the catcher - he's totally afraid of the ball, so this may not be his regular position!

Big hit from Brady! Cross your fingers that Jax gets one tonight :)

Frozen yogurt afterward to celebrate!

Underwear and baseball socks - the uniform of wrestlemania happening in my living room.

Baptism day for Jameson, our godson!

We found blood, then found where it came from, EEK! Sunday night Jax picked at his prolapse and this happened. Thankfully our neighbor (a doctor) was home to look at this and we cleaned him up with some antibacterial ointment. THIS KID.

He's all like... what? Totally desensitized to physical trauma I swear.

Current breakfast plan has been successful for 3 days. Fingers crossed. You're welcome for the OPEN mouth food shot!

No comments: