Thursday, June 18, 2015

Kindy is over and some growth charts from the Endo

Kindergarten is officially over and we have FIRST graders!

Brady cried off and on the entire night when he came home since he didn't want it to end. They are definitely ready for the next year academically, so it's TIME! Their report cards make me beam with pride - not just academically, but their dispositions of joy they bring to their classes. I hope they stay this way forever. And I really hope they both get first grade teachers who keep their love of school alive.

They will start up morning summer-school next week - although we leave for a trip up to Washington Island for 4 days for a family wedding, so they only hit one day of it. This week Jax had his Endocrinology followup and he has his Feeding/GI followup on Friday. He continues feeding therapy weekly throughout summer, and Brady will get 2 days of speech therapy at summer school through July. The therapy sessions are dwindling down to ONE each over the summer - that's progress!

The Endocrinologist was VERY happy with Jax's growth. We last saw him the day Jax checked out of the hospital, so the doc asked a lot of questions pertaining to that and did a full physical on him. I'm never sure how his growth is since he doesn't seem to be gaining on Brady in height and is shortest in his class. The doc asked if we thought Brady was growing a lot and I could definitely say YES, I feel like he's growing leaps and bounds. The doc said Jax is too if he's keeping up the same height-difference to him. I mean... I guess that makes sense!

The doc said his weight has definitely gained as well, but he'll let the Feeding/GI team address that since he's definitely still underweight for height, but it's not off too much since he is... short :)
He hasn't hit the growth chart yet, but he's definitely the closest to it that he's been since the age of 2 before he fell off the charts (he and Brady used to be 5-10% together between 12-18 months).
So, we adjusted his meds with the growth and we'll stay the course!
I'll update after the Feeding/GI appointment on Friday. I have a feeling they'll have some opinions after recent medical events happened since the last followup - he NEEDS to weigh a certain amount so he can handle illness. Even a pound would do wonders - we'll see what they say.

Brady with his speech therapist Mrs Thieme.
Last day of school!


Brady with his teacher (and a sweatshirt that never made it home - grr).

Some of the boys.


We had a hibachi-dinner that night to celebrate and Brady wanted a food-journey recorded (THIS KID!) Here he is enjoying salad and mushroom soup (blech).


Here he is enjoying the taste of lobster and shrimp (blech, lol)

And here he tried mushrooms, which  he thought he loved for a moment, but after the second one decided they weren't for him.

Yup, Jax PET the fish (with the mustache as he calls it).

Early Saturday morning baseball.

Our friends had a baby boy named Owen last week.

The boys are horrible at holding up a newborn!

First day of summer vacation and this happened in the first hour (sigh).
Workbooks each morning to stay out of therapy!

SO close to hitting the height chart!

Still need some work for the weight, but headed in the right direction

One of the teeth that Jax had ground down to the nerves. We had him work on it every day to get it out and here it is hanging. Daddy got it out with the promise of a new game app - it's OUT! Oddly, his smile looks no different since his tooth was so worn down to begin with! Let the buck teeth begin...

Tuesday, June 9, 2015

So, so much

Well, it's been a difficult past week.
My grandma passed away Sunday, May 31. My family seems to be dwindling so fast lately. I'm not even close to being done grieving for my grandpa, so all this seems a little numbing.
I took a couple days to get the house in order and pack for myself and the boys. I went home last Thursday to spend the day/evening with my mom, aunt and cousin (the only girls in the family). Jason stayed back with the boys until they were done with school on Friday and then he headed up with them to his hometown which is near mine.

My brother, uncle and other family flew in and we had a long weekend together. The funeral was filled with beautiful flowers and a very surreal feeling. The boys did well. Brady didn't want to leave the casket area and at one point asked to kneel down in front of Grandma for quite a long time. Jax was completely uncomfortable and stayed away, but did come by Brady and I momentarily.
We came home Sunday and have been trying to play catch up since. I'm doing ok. I have a constant 'sad feeling' going on, but I feel like that's ok. I'm nervous for the boy's birthday next month and holidays at the end of the year to really feel the realness that they're not there like they always have.

This is the last week of kindergarten for the boys, so I'm definitely distracted with all those going ons. We finally finished up our repairs of the attic, bathroom, ceilings and vents inside the house, so that's a relief. Today, our lawn was finally finished - which had been put off due to rain for the past 2 weeks. Jay has been outside feverishly trying to figure out the sprinkler situation to keep all this new grass growing.

I'm still in shock that the boys are almost officially done with kindergarten. They are suddenly on a rapid warp-speed to graduate and leave me I swear!

My mom, grandma and the boys last year.

My grandma's first selfie with me. This makes me smile.


I bought the boys new summer clothes and realized quick that Jax is still not fitting into size SMALL for boys, sigh... he's getting gaunt again and I worry. His next Endocrinology and Feeding Team followups are next week. More to come...

Star Wars night at Miller Park on May 30 (I behind on updating)

The special section for the special bobble head. Yes, the LAST seats!


Too cute


The boys have baseball cards :)

The last of repairs inside last week.

May aunt, cousin, niece and mom all out by my grandpa's house last Friday.

Silly. Brady asked me to write down the Apple App password this morning. This was my response to him.

Final-stage of front yard commenced this morning.

Many trucks of dirt came.

What a disaster for a few hours!

Ta-da!

New grass planted along the side and down along behind the swingset.

The boys will have double the amount of yard to run around on soon enough.

Now we need a pretty mailbox since you can see it!