Thursday, November 17, 2016

A little more time

Since Halloween, we've had an eventful couple of weeks.
The boys had their Upward basketball league evaluations, and Brady actually did extremely well. I'm interested to see if he's different on the court this season. We are also gearing up for their big baseball season in spring by ordering our team clothes. Yes, "our", meaning the family since they're on this select team now. How official :)

We atteneded a joint-birthday party for Santina and Jameson a couple weekends ago and the boys had a blast exploring Rachel and Dennis' new home. Brady was excited to see that they've acquired a piano from their old neighbors and still insists he wants to start lessons. We're going to see if we can fit it in the schedule after the holidays since a woman in the neighborhood just so happens to be an instructor! Now to find a large keyboard to borrow until we know for sure he wants to stick with it...

Jax saw his asthma specialist and we're excited to see how well he's been doing, so we're going to continue his summer-protocol daily preventative and see how he does through the winter. If he does well, we may be able to lower him out of the class of meds he's on in the spring. Which would be amazing. He's on a daily long acting COPD inhaler and we'd love to cut the steroids down even more, so that's looking up. Cross your fingers he does well this winter again!
He's also still working hard on learning how to spit in his feeding therapy. He's working with a toothbrush and actually got a little toothpaste back out of this mouth this past week. He still has a way to go, but he's working hard on it.

We had a quick mini-session for family photos back up in Jay's hometown. We really lucked out with the fall weather this year as we head into winter and today is near 70 degrees with a sharp fall tomorrow night to the 30s. Who doesn't want to get sick just from that?!

In the news that I'm not quite ready to go over yet, is the neurology appointment that Jax had last week. I had myself convinced that it would be my closure to have a neurologist review his history, give an exam and tell me we're doing everything we can and send us on our way. And while it's not totally un-true that that is what happened, there was a 2.5 hr review and exam completed by two specialists and some diagnoses handed down along with the request of another MRI.

We are processing the information given to us as a family at this time and will share the information after the next round of testing and reviews are complete. The MRI is on Dec 1, and we should have some information a week after that. So, while I know this blog has been a documented journey of these lives, I just need a little more time on this one.

I loved that in the chaos of gift opening, Brady gave a posed smile.

And so did Santina!

Jax's student council activity this week with his buddy Randy at The Caring Place. They made orange turkeys!

Our life each morning now with my charts. While Jax doesn't do #4 yet, we're working our way up. And if he forgets something on his list to bring home, he does a chore to make it up. We haven't had a full week perfect yet, but we have goals :)


The elf

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